Hi folks!
Another weekly update.
Here is a link to a radio interview I did with Lisa Robinson from CBC yesterday morning.
http://podcast.cbc.ca/mp3/edmontonam_20100714_35368.mp3
One of the 'smart' people(Neurologist/MS specialist) says on the program that what I am experiencing is possibly just 'placebo effect'. I am not an idiot!
I know my body and what my body is doing. THIS IS NOT PLACEBO!!!!!
When will they get their heads out of the sand(or wherever their heads are stuck)?
Hope the link works!
Thanks Lisa!
Thursday, July 15, 2010
Tuesday, July 13, 2010
More media
I did an interview with CBC radio yesterday on my India experience. They saw my interview with the Advocate and were interested in my experience with the 'Liberation Treatment' as well.
Hopefully this will snowball to the national level. Got a call from some folks in New York who were intersested too. They saw Paula's video of my interview on 'Facebook' somewhere.
Word's gettin' around so don't loose heart people with MS and keep making noise!
As for my health, still no headaches, feet still normal, more energy, some tingling in my hands.
It's all good!!
Hopefully this will snowball to the national level. Got a call from some folks in New York who were intersested too. They saw Paula's video of my interview on 'Facebook' somewhere.
Word's gettin' around so don't loose heart people with MS and keep making noise!
As for my health, still no headaches, feet still normal, more energy, some tingling in my hands.
It's all good!!
Sunday, July 11, 2010
link
Here is the e-mail I received from Paula witht he link to the story she did. Just copy and paste it in your browser.
Hi Tom,
I hope things are still going well for you.
The story/video about your journey ran in today's paper.
Here is the link to both:
http://www.albertalocalnews.com/reddeeradvocate/news/Hoping_for_liberation_98106304.html
Thanks so much again for being so welling and open to share your
story. I hope it helps raise some awareness.
Paula Trotter
ptrotter@reddeeradvocate.com
Hi Tom,
I hope things are still going well for you.
The story/video about your journey ran in today's paper.
Here is the link to both:
http://www.albertalocalnews.com/reddeeradvocate/news/Hoping_for_liberation_98106304.html
Thanks so much again for being so welling and open to share your
story. I hope it helps raise some awareness.
Paula Trotter
ptrotter@reddeeradvocate.com
Friday, July 9, 2010
In the news!!
Well, step 2.
Get the media involved.
My story appeared in the Red Deer Advocate today. I trust that it might get the right person's attention.
check out, albertalocalnews.com/reddeer advocate/news/Hoping for liberation 98106304html
I sent the link to Lorna at Listen Up TV in hopes that she may be able to help bring more awareness to this treatment.
Keep on keepin' on!!
Get the media involved.
My story appeared in the Red Deer Advocate today. I trust that it might get the right person's attention.
check out, albertalocalnews.com/reddeer advocate/news/Hoping for liberation 98106304html
I sent the link to Lorna at Listen Up TV in hopes that she may be able to help bring more awareness to this treatment.
Keep on keepin' on!!
Thursday, July 8, 2010
Check it out
It's July 8th. Got up this morn at 6:30 to go swimming. Flat tire on my wheelchair. <}:~(
Guess I wasn't supposed to go to the pool today.
I've got some sensation in my hands again today and it's the 4th day in a row where my feet haven't swelled at all. They look normal.
If you're interested in seeing my 2 surgeons(Dr. Sayeed & Gopi) at work doing the same proceedure they did with me. Check out you tube and punch in regans72 and click on Valerie Lilly venoplasty. There you will see the artists at work for yourself.
Deb is feeling so much better now and is back to eating wheat with no adverse effects.
We feel very blessed by all of this and are looking forward to more good stuff to come Lord willing.
Guess I wasn't supposed to go to the pool today.
I've got some sensation in my hands again today and it's the 4th day in a row where my feet haven't swelled at all. They look normal.
If you're interested in seeing my 2 surgeons(Dr. Sayeed & Gopi) at work doing the same proceedure they did with me. Check out you tube and punch in regans72 and click on Valerie Lilly venoplasty. There you will see the artists at work for yourself.
Deb is feeling so much better now and is back to eating wheat with no adverse effects.
We feel very blessed by all of this and are looking forward to more good stuff to come Lord willing.
Sunday, July 4, 2010
July 4
Happy Independence Day to all Americans today!
Thought I ought to do an update for those interested. I saw my GP Fri. He found it interesting that my headaches were no longer an issue. He sent out a requisition for the 3 &6 month follow up ultrasounds + 1 for a stress test for the ol' ticker.
My feet actually fit into my Justins yesterday as I suited up to officiate at a wedding. That was cool!
Over the last 5 days I have experienced a tingling in my hands for varying lengths of time.
Each day has been different but being able to feel anything after 30 years is kinda cool!
Today the feeling is less but still there. The pictures are of the 'Windsor Hotel' *****
Beautiful!!!!
Tuesday, June 29, 2010
June 29th
Have had just about 2 hrs of sensation in my hands as of now.Purdy cool to think that I could regain feeling in different parts of my body!
Did an interview with the 'RD Advocate' this morning. Word id getting out there.
Got a call from a feller I talked to last week about going for surgery for his wife. They're leaving for Bangalore on the 5th of July. All the best folks!
I have been inundated with calls from well wishers, info seekers and just plain interested parties.
I am disgusted to some extent at the security bill for the G8/G20 summits and the lack of funds available to the MS sufferers of this country hoping for a better quality of life.
I am one of the fortunate ones who had the friends with the resources to enable me to get the 'Liberation Treatment' done.
How about those who don't have such? It ain't fair! We should at least be given the opportunity to have it done in Canada if we wish. This decision should not be left to those who don't know what it's like, but to those of us who do.
This is OUR life and OUR body so do we not have the right to make a decision regarding possible improvement for both?
Have a sponduvious day! Phone yer MP. I did! <}:~) (My MLA too)
Did an interview with the 'RD Advocate' this morning. Word id getting out there.
Got a call from a feller I talked to last week about going for surgery for his wife. They're leaving for Bangalore on the 5th of July. All the best folks!
I have been inundated with calls from well wishers, info seekers and just plain interested parties.
I am disgusted to some extent at the security bill for the G8/G20 summits and the lack of funds available to the MS sufferers of this country hoping for a better quality of life.
I am one of the fortunate ones who had the friends with the resources to enable me to get the 'Liberation Treatment' done.
How about those who don't have such? It ain't fair! We should at least be given the opportunity to have it done in Canada if we wish. This decision should not be left to those who don't know what it's like, but to those of us who do.
This is OUR life and OUR body so do we not have the right to make a decision regarding possible improvement for both?
Have a sponduvious day! Phone yer MP. I did! <}:~) (My MLA too)
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